Our CDH Journey with Baby Kaden: Praying for Mikey, Chanda and Tristan

I just want you guys to know that we are praying for you. I am so sorry....It's just wrong...

What is Congenital Diaphragmatic Hernia (CDH)?

A congenital diaphragmatic hernia (commonly known as CDH) is an opening in the diaphragm (The dome-shaped muscle that seperates the chest cavity from the abdomen.) It occurs at approximately 9 weeks gestation, when the diaphragm, for an unkonown reason, fails to close completely. The hole allows the abdominal organs to push into the chest cavity. CDH is a life-threatening birth defect because it limits the growth of the lungs.

CDH occurs in every 1-2500 live births in the United States. Approximately 1,800 babies are born each year with CDH. Approximately 50% of all babies born with CDH die. CDH happens just as often as Spina Bifida and Cystic Fibrosis yet many have never heard of CDH.

Who Holds Your Hand?

The journey lies before you,
The path remains "unsure",
And there are times you question,
All the things you must endure,
Other's may have walked this path,
But still, it's not the same,
You say Lord, haven't I done right?
You wonder...who's to blame,
You say, Lord, it's too difficult,
This desert, I must tread,
Why can you not give us,
A different path instead?
I know the plans I have for you,
God tells me, carefully,
My plan is not to harm you,
Just keep your eyes on me.

The very first step, which you take,
Into this sinking sand,
Was laid out for you long ago,
And set by my own hand.
And so, I set my feet ahead,
Doing what I must,
Trudging into the unknown,
And giving Him my trust.

The sand feels warm beneath my feet,
The day grows hot and dry,
I walk forward, my eyes on him,
Not stopping to ask why,
And little do I even know,
That other's watch me too,
This trip a testimony,
Of all that God can do.

But I am growing weary,
Thrirsty,worn,tired,
Trying to remember,
All the times I've been inspired.
In the middle of this desert,
I'm losing my momentum,
God says, place your thoughts on my son,
Remember why I sent him.
Because he walked this desert,
Beacause he suffered too,
Beacause he knows and understands,
The pain your going through.

As other's watch your journey,
Your strength gives them new hope,
They see Me in your struggles,
And find new ways to cope.
Not looking, you will find me,
Within this sinking sand,
Know who walks beside you,
Know, who holds your hand.

~Stephanie Husted July 2008

Our CDH Journey with Baby Kaden

Sunday, August 30, 2009

Praying for Mikey, Chanda and Tristan

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7lbs. 12 oz. 19 1/2 in. of pure LOVE

Kaden Alex Kuehl

What is Congenital Diaphragmatic Hernia (CDH)?

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Our CDH Journey with Baby Kaden

Sunday, August 30, 2009

Praying for Mikey, Chanda and Tristan

No comments:

Post a Comment

7lbs. 12 oz. 19 1/2 in. of pure LOVE

Kaden Alex Kuehl

What is Congenital Diaphragmatic Hernia (CDH)?

The Family

About Us

Blog Archive

Facebook Badge

Facebook Badge

Subscribe To

Followers

My Blog List

CDH Awareness

CDH Information and Links

Who Holds Your Hand?

Visitors Following Our Journey