Monday, November 30, 2009

Daddy's new tattoo in memory of Kaden Alex Kuehl



Here is the finished product...After 5 1/2 hours of pure pain. Craig said it really hurt, and he had to lay flat, but it was nothing compared to what Kaden had to do in those precious 17 days. I am getting mine next. Something on my foot. Don't quite know what yet...

Friday, November 20, 2009

7 Month Angel~versary

It has been seven months now since you have been gone from me. It still hurts like it was yesterday, but it does seem, somewhat, in the distant past. Life continues on without you, but you are never far from my thoughts. I have talked to other women who have lost babies, some of them over 40 years ago, and it seem that my pain of losing you will always be here-until we can be together again. But I am okay with that. It means that you will always be with me, even through my pain of missing you. I still look at your sweet face every day and miss having you safe in my tummy doing your Kung-fu-fighting. I really miss that. I had so much love to give you, we all did. I just hope that you can feel it still. We all really miss you, what we dreamed for you and wanted for you. I love you baby boy...

Friday, October 16, 2009

Candles for our babies



Last night was Infant Loss Awareness Night, and Craig & I (and all our friends) had dinner at our house and lit candles for just some of the babies that have touched our lives. It is so bitter-sweet...I was so sad that there were so many names to list (I am sure I forgot someone). All of our bags had the names of CDH babies, ones who's stories we followed, and ones who's families were such a great support for us during our journey with Kaden. There was just one baby, Brendon, that died from SIDS on Wednesday. His mom, Carrie, was one of my Two-week-Wait friends and she was very supportive of me during my pregnancy. Her twin boys were born about 2 weeks before Kaden. I know her pain has to be unimaginable. Please pray for her family during this extremely difficult time.

Tuesday, September 22, 2009

Mommy's Letter to Daddy


Now that things for the most part have returned to normal--whatever "normal" is for a family that has lost a child, I want to say some things to my best friend that for one reason or another have recently gone unsaid. I am so thankful that you found me, that you love me and that we have Jess and Christopher and Logan. I have never known a love like the love you give to me. I KNOW, without hesitation, that I am your world. That there is no one that you love more than me, and no one that I love more than you. Just thinking of you makes my heart smile and when we are apart (ie:you go to work) it is crazy how much I miss you. I know I have been an emotional roller coaster ride, not myself since losing Kaden, but you hang in there and love me still (sometimes it has to be difficult). I know it hurts you when I am sad, and it is not my intention ever to cause you pain or make you upset. There are things that I have to work thru in my own time, and just know that when I get sad it is not because of you, or something that you have done, but because I really miss our little guy. I am already so blessed to have 3 great kids that I sometimes feel selfish that I want another one. But my desire to have a baby with you is so deep it consumes me. I know it will happen, I am just trying to be patient. Anyway, I want you to know how much I love you--not that "I love you" ever goes unsaid in our daily life. But when I say it, I really mean it....

Thursday, September 3, 2009

Happy Bithday Baby Kaden (and Max)

Today is Kaden's 5 month birthday. Times seems to be flying now. With the recent passing of Jackson, Ireland, and MJ, those horrible feelings seem to creep up on me when I least expect it. It is hard to get over losing a child, but when you see other parents--deserving parents--losing their child, too, it is hard to move on. I am brought right back to my grief everytime one of these babies loses their battle with CDH. I relive in my mind what it felt like to have to remove Kaden from support-to have to make that "final" decision. In essence, to give up on him. I know Kaden is in a better place, and no longer suffering, but this whole situation is just wrong. I never thought I would ever lose a child-ever. I'm sure no one ever does, but the question as to why we are chosen to go thru this is very painful to me. I am hoping that part of the reason Craig & I were given Kaden is to help raise awareness for CDH. I know myself, and I would never be as passionate about making a difference if I, personally, had not lost a child to it. A piece of me will never be the same. There will always be a hole in my heart for the baby that I never got to know.

Mommy loves you, Kaden, and misses you terribly.

Sunday, August 30, 2009

Praying for Mikey, Chanda and Tristan

I just want you guys to know that we are praying for you. I am so sorry....It's just wrong...

Friday, August 21, 2009

The 4 Month Marker

Just thought I would pop in and give a brief update. Yesterday marked four months since Kaden passed away. I sure do miss that little guy. The days are getting easier, I still have my moments, but I am starting to look forward to the possibility of being pregnant again (hopefully soon). Craig and I had a really great vacation, just the two of us. I have been following all the other babies that have made their arrivals, and the emotions that come thru their blogs brings me right back to the NICU--like it was yesterday. It is amazing how those feelings get burned into your being. Does that make sense? I was deeply, deeply, deeply saddened to hear that Jackson Beal earned his wings while we were gone to Mexico. His story was so similar to Kadens, and I was praying so hard that their outcome would be different than ours. Candice and Rob are in our prayers during their healing. The days after can be a serious emotional roller-coaster. Also praying for Ireland who made her entrance into the world two days ago. She is on ECMO now, but doing good and getting the rest that she needs for her surgery. Mikey and Chanda-you guys are in my thoughts constantly. It really stinks to have to go thru all this, especially after a c-section.

Anyway, just want you all to know that we are still here, taking it day by day:)