Kaden continues to have excellent stats last night and all day today. He is still making good pee pee. We can really notice that his swelling is going down. Don't get me wrong, he is still very swollen, but it has gone down quite a bit. I can actually see some wrinkles in some parts of his skin from where it was stretched out. So all is good for his stats and he's still doing what he's supposed to.
We had another meeting with the doctors today. They told us that Kaden needs to keep on going with his progress, and Easter Sunday, they will be doing a trial to see if he is ready to come off ECMO. If he's not ready on Sunday, then Monday will be the day. I really can't wait to get him off the ECMO. They were telling us today that they want him off as soon as possible just in case they have anymore problems with the ECMO circuit. They think that if he stays on track with the same progression as the last two days, he should have a great chance getting off the ECMO.
We were kicked out of our room at the hospital today. Our social worker told us that she was going to try and get us into one of the local hotels and that we would split the bill with the hospital. Well, she did get us into the Carl Hotel which is located .4 miles from UCSF. They picked up the bill for a three night stay. We checked in today and it's really not bad at all. It's a small room with a bed, toilet, shower, and a small 12 inch TV. Perfect for Kristi and I...plus, it's within walking distance. We will be spending most of the day at the hospital with Kaden anyways.....the room is just a place to lay our heads and take a shower.
This evening, Uncle Jose, Auntie Megan, and brother Christopher came to visit Kaden. Auntie Megan bought us dinner at BurgerMeister. It was really good and it was nice to step away from the hospital for the first time in over a week. After dinner, we went back to the hospital to check on Kaden. His numbers were still up and he was making good pee. We told him that we loved him and we would be back in the morning. We walked back to our hotel, and are now trying to relax a little bit. Of course, I know that Kaden is on both of our minds constantly....but it's nice to be away from the hospital setting.
We got a really nice gift from Marion, Jason and Angel Addison for Kaden today. It's a CDH Cross for Kaden's Isolet, and a beautiful ceramic cross that says, "For this Child I prayed". We will place them both on Kaden isolet in the morning when we get back to the hospital.
Thank you all so much for everything you are doing for us. More to come tomorrow.
Again.. I had to wait up for an update. I think about you guys constantly ( I am still on maternity leave and have alot of free time, hehe) and am so glad to hear Kaden is still doing his kung fu fighting..( i love that Craig.. i decided that you guys would be great friends with my husband and I because we are always doing silly things like that). Anyways, I am just super happy for you all and hope Kaden continues on his "new" track. I knew Max would help him out!!! Thanks for the nice words on my blog, Kristi. I was hoping the thankfulness for CDH wouldn't offend you all, but you know what I mean! Cant wait to meet you one day, as I have now decided it MUST happen. Much love and many prayers!
ReplyDeleteAshley
i can not even begin to let you know how excited matt and i are to read this update. i'm so proud of kaden!!! we will pray that he continues to remove more and more fluid and that his little body is healed. how amazing that he might come off of ecmo on easter sunday!?? and if not sunday, then monday. we will remember to pray especially hard for little kaden on those milestone days.
ReplyDeletewe are also so glad that you are finally getting more rest. i'm sure that kaden wants to make sure that momma and daddy are taken care of as well and a good burger is always a welcome thing! :) please let us know of any other ways that we might better pray for kaden and the kuehl family. know that you are in our thoughts and prayers.
I'm checking in on Kaden's progress frequently and continuing to pray for him. He is such a tough little fighter. I'm glad you guys are getting a little rest when you can - it's hard to come by in the NICU life. Hang in there!
ReplyDeleteJen
P.S. May I post your "praying for Kaden" graphic on Sofie's blog? I will link it back to your site. Let me know if it's okay if you get a chance... jen@sofiascdhstory.com
Hi Kristi and Craig,
ReplyDeleteWe are so so pleased that Kaden is continuing to make good progress. We are thinking about you and praying that Kaden can come off ECMO soon and give you a nice Easter present.
Hugs,
Ingrid, Alex & Alina
Go Kaden!!!
ReplyDeleteSo happy that Kaden is making great progress!! I hope you all have a good weekend and Kaden is strong enough to come off ECMO on Sunday. Keep fighting Kaden! Praying for your little boy.
ReplyDeleteHugs, Tracy - Ian's mom
What wonderful news. It's so difficult seeing our babies body so swollen; I'm so happy for you & Kaden that his body is returning to normal, albeit slowly. Kaden is such a beautiful little boy and an amazing fighter. My prayers continue for him and coming off ECMO.
ReplyDeletewww.carepages.com/Emilyishere
That is such great news!
ReplyDeleteGreat news!! A few words of caution: if the first trial off isn't successful, don't get upset. It took Carter FIVE tries to successfully get off ECMO. Each try he lasted a little longer, but just wasn't ready. I hope and pray that the first trial goes well, but be prepared if it doesn't. Know that even if the first, or second, or third trials aren't successful, he WILL come off that machine! :)
ReplyDeleteGood luck tomorrow!
Thank you for the update, Tom and I are so happy to hear that Mr. Kaden is doing well. We'll be looking forward to the "Kaden's off ECMO" post that we know is coming just around the corner!
ReplyDeleteKeep up the fight Kaden, we're all very proud of you!
We're also glad to hear the hospital hooked you up with a place to stay, that's awesome!
Take care, get some rest...and tickle Kaden's toes for us! :-)
Hugs and prayers,
Sheryl & Tom
I am so gald to hear good news! We are sending prayers and love from Atlanta. Stay Strong! God will answer your prayers!
ReplyDeleteMuch Love,
Marion
Wow, what a champ! I'm so happy that he's doing so well. We will not stop praying for him. I'm just so happy that you're seeing little wrinkles on his body. And making good pee pee too. So great.
ReplyDeleteAlways in our thoughts and prayers!
Love, Stephanie
Brooke and Kamryn's mommy
You are so strong, and I do follow your blog with prayers for Kaden and for you both. You are walking where our family will walk within a couple months, and you are making a difference as we watch you face what each new day brings. Just know how much others care.
ReplyDeleteMuch love and continued prayers,
Gammy..grandmom to Kamryn and Brooke
Prayers and healing thoughts going Kaden's way; strength and hope for all...
ReplyDeleteJoseph's grammy