Saturday, April 4, 2009

The worst night of our lives

i apologize for the short post, and not alot of details, but we are so physically and emoitionally exhausted that I really don't feel like writing alot. Kaden had a really bad night, and it was decided that it would be best for him to go on ECMO at midnight. During the proceedure, his trach tube came out and they had a really hard time getting it back in because the canulas for the ECMO machine were already in place. The nurse came and woke us up (after about 1 hour of sleep) to come up to the NICU because they didn't think that Kaden was going to make it--his heart had stopped, and the were doing chest compressions and giving him drugs to try to restart his heart. I went up there feeling like this was the end of our journey, but by the time we got there, his heart was beating on it's own again and they were stabalizing him. They are now not sure if the whole ordeal caused any damage to his brain, but they had brought in a brain scan machine that measures brain activity before we left, and said that his brain activity looked normal. So at 3am Craig & I got into bed and we slept unitl about 10am. We are on our way to the NICU to see him, the nurse said he was still stable. I will try and keep everyone posted as much as I can and your words of encouragement are definately getting us thru the day. I know I don't even need to say it, but please pray that Kaden can be that "miracle baby" and astound us all.

14 comments:

  1. Sending lots of prayers Kaden's way!

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  2. We are praying for Kaden. Keep fighting darlin, you can do it!!!!

    Kristy, mum to Angel Skyla, LCDH 13/10/07-13/06/08
    http://skylacdhbaby.blogspot.com

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  3. Thinking of you all! I know how scary all of this can be, hopefully he can get the rest he needs with ECMO, and start making steps in the right direction. Kaden will remain in my prayers.

    Please remember to take care of yourselves, Kaden needs you to be healthy too!

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  4. I am thinking of you constantly and praying that Kaden will be our little miracle. Please know if you need an ear, I am here for you no matter what time of day! I am sending you a big hug; hopefully you can fell my love all the way in SF.

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  5. Sorry to hear that there were more complications! We're praying very hard that Mr. Kaden stabilizes out! Hang in there, try to get rest...I know, easier said than done!
    We wish you all the best....hang in there little Kaden, you have lots of people supporting you all over the country!!!

    Love and prayers,
    Sheryl and Tom

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  6. Praying for no more super scary nights for you!

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  7. I am praying for you! My son was on ECMO for 6 days & had surgery afterwards...he's 2 now... ECMO is so scary to see but it sure helps these little guys out who need it! I hope he doesn't have another hard night- we are praying!!

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  8. We are praying for Kaden to get the rest that he needs so he can come off ECMO soon and ready to fight. No rush Kaden, take advantage of it. Kristi I know its very hard to rest but when you get a chance to sleep take it b/c it can get very draining and the more rested you are the better decisions you can make and know what questions to ask (at least that was me)

    Sending hugs from Atlanta!

    ~ Carla - angel Joseph's mom (2.3.09-2.26.09)

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  9. I am praying for you guys!!! I surely hope that today goes much better for you all. FIGHT KADEN!! I know that he can do it! I love you and if you need to talk, call me- (615)367-0183. I will continue to pray extra hard for Kaden and ask my Max to keep a close eye on him today and give him some angel talks!
    Ashley

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  10. I am praying SO hard so Kaden remains stable.
    Love,
    Fer

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  11. We are so sorry that you have to go through this! It's great news that Kaden is stable. Ollie's parents were told that he wouldn't make it through the night and that if he did, he would be brain damaged and today he is one happy boy. It's amazing how strong and resilient these little ones are. Keep your spirits up, Kaden will do great! We are praying for you!
    Hugs,
    Ingrid, Alex & Alina

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  12. ECMO itself is a miracle and so is Kaden. Remember, this is the nature of CDH. I hope you don't have any more big scares, but if you do, don't lose sight of the big picture...all of these bumps are to get Kaden to the point of going home with your family. I am not going to lie to you and tell you that it's an easy ride, because it is gut-wrenching and the most difficult thing you will ever do. BUT, you will survive it. Stay positive, ask lots of questions, stay informed and say lots of prayers. Believe that Kaden WILL beat CDH and don't let anyone convince you otherwise.
    -Kelli

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  13. Hi Craig & Kristi-just wanted to stop in to share our ECMO story and send prayers to you all. My daughter, Makena, was on ECMO for 16 days AND had 2 surgeries while on it. She is now 2.5 and thriving. It was truly a miracle for our baby-it gave her body the time to rest while she prepared for the rest of the journey.
    I send you positive vibes and healing thoughts to Kaden as you travel this long and winding, up and down road.
    xoxo

    Libby Cohen
    Mama to Makena LCDH 9/30/06
    www.caringbridge.org/visit/makena

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  14. Praying for sweet Kaden that he can overcome this hurdle and ECMO gives his body time to rest, rest that he needs to continue to fight. This is one of the most difficult life events you will endure, but try to look at the big picture and stay positive through all of the good and bad days and cherish every moment with Kaden. So glad you got some rest too, you need your strength too.

    Sweet, baby Kaden, hold on to the love around you and fight...amaze your wonderful parents. We are praying for you!

    (((HUGS))), Tracy - Ian's mom

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