We got together with the doctors, one nurse, and our social worker this afternoon to discuss Kaden's progress. It went TERRIBLE!!! The doctors are telling us that they are at about the end of their rope as to what they can do for Kaden. They said that they have pretty much done everything they can to get Kaden better, and that he is not responding well to anything. His stats have been all over the board all day long since they changed over to the different ventilator. His stats go up, then go down...they hand ventilate him and his stats go up, then they go back down. His O2 split and CO2 level is what is causing them the most concern. He also is not putting our enough pee to get the fluids off. He is stating right now with upper O2 levels around the mid 70's and lower O2 levels in the high 30's....NOT GOOD. His CO2levels flucuate depending on what they are doing to him, but overall, they are pretty high. One of the medications Kaden is on is called FLOLAN. It's a VERY powerful drug used to open up the blood vessels through out the body. They are getting to so high of a level, that they are worried that it will cause Kaden to start having problems with his heart. They told us that if things don't improve in a few days with all they are doing, they have nothing else to try. They are not saying that he has zero chance of survival, but it's getting close and that they would tell us when they get to their last efforts before they can't do anymore. It really makes me sick to my stomach.
Kristi and told them that we are not giving up on Kaden. We understand and can see that he is not doing well at times, and they are working very hard to help Kaden, but we will keep on going to see if he can improve and pull through this. I will update later tonight to let you all know how Kaden is doing. Right now.....Kristi and I are a mess!
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craig and kristi, i'm sorry you had to face that this afternoon. those drs are not God and they do not hold kaden's life in their hands. but God does and He has the final word! i know they are well trained but God knit kaden in kristi's womb; He knew before you two even met that you would face this trial and only He knows what the end result will be. we will pray even harder that kaden's body is healed and that you both have the strength as well as the rest needed to move through this. i wish i could give you both a great big hug! remember, God is the one in control and there are tons of prayer warriors bowing before God on behalf of your family!!!
ReplyDeletePraying for the two of you and for Kaden. Praying for pee and stable O2 sats. Remember to keep hope, Kaden is working on his own timeline. Keep fighting little one!
ReplyDeleteLove,
Amy Miles
Kristi and Craig.
ReplyDeleteHang in there, we are praying hard for you and Kaden!! These babies are fighters and are known to test the Dr's. Enjoy every moment you have with him and take one day at a time, you have a lot of angels looking after you.
Love, Jaime, David, Reggan, and ^Ryann^
Criag and Kristi and family! I am so upset reading this. I pray that Kaden starts to show them the things they need to see to get them more optomistic. Hang in there. This journey is a difficult one (putting it mildly) and I know you two are a mess. I am a mess with you. I HATE that you are facing this and having to sit and listen to that. Remember that things can change in an instant, just like the good can go bad quickly with a CDH baby, the bad can also become good quickly!! It is so evident that Kaden is not giving up yet and that he is still kung fu fighting! I will pray for peace and comfort for the two of you and the familiy and for sweet Kaden's body to begin to function properly!!! Much love and many prayers.
ReplyDeleteAshley
by the way.. i love his little toes.. that was my favorite part of Max.
ReplyDeletePraying hard for your sweet, beautiful son. Those doctors don't know the strength that Kaden has, but God does. Wrap yourselves and Kaden in His love.
ReplyDeleteMany prayers coming from Texas tonight.
miracles happen all they time... we are praying that you get your miracle and that Kaden proves all of the dr's wrong. with god anything is possible. stay strong and have faith!
ReplyDeleteWe are praying nonstop for Kaden. I don't post every time but I check your blog religiously and check for new updates all the time. Kaden is strong and I believe he will pull through this. He has such amazing parents. All the best to your family-
ReplyDeleteWe are praying for Kaden and your family. Love to you all.
ReplyDeleteWe aren't giving up on this little fighter either and are praying for all of you! Stay strong guys!
ReplyDeletePraying for Kaden and saddened by the news. Thanks for taking the time to update us.
ReplyDeleteThinking of you...
Praying for Kaden, praying that he turns the corner. Cherish every single moment with Kaden. I am praying we see some big improvements in his stats overnight--fight Kaden fight!! Coming off ECMO is a hard transition for Kaden and then switching the vents too, praying for strength for Kaden and a restful, good night.
ReplyDeleteThinking of you Kristi and Craig, Tracy - Ian's mom
Just a prayer for you all. We cannot even imagine what this is like for you. We can only pray that you can see God right by your side. He will lead the way. You just follow beside him keep praying. Kaden is right there with you no matter where you lay your head tonight.
ReplyDeleteThoughts and prayers,
The Cieszko Family (Chris, Alison, & Davis Michael)
We will not give up hope for Kaden. He is a fighter and he is trying to find the strength he needs to pull through this fight. What a change of emotions y'all have had throughout the day. We are thinking of you and not giving up hope EVER!
ReplyDeleteLove, Stephanie
Brooke and *Kamryn's Mommy
I am not giving up hope! I am praying for Kaden to get stable. I am praying for both of you to remain strong.
ReplyDeleteI love you!