Thursday, April 9, 2009

A "Good" Day


So last night after shift change, we went to see Kaden in the NICU. As we entered the NICU, we noticed that the X-ray tech was leaving Kaden's area. We asked what was going on and they said that they were having some problems with Kaden's ECMO canula again....it was still kinked. The surgeon was able to adjust his canula (move it around and re-stich it in a different area) to try and compensate for the kink. Well.....it worked! Kaden's stats immediately shot up to the 90's for his O2 levels. We were very happy and told the surgeon that he could come and touch Kaden whenever he wanted to. We hung out until about 11 pm, then decided to try and get a good night's sleep.

We woke up this morning feeling pretty re-freshed. Kristi and I both slept good all through the night. I think we ended up getting up about 8am which was wonderful. We got up and went to check on Kaden. We walked in to see our little man with a bag full of pee-pee and his stats were GREAT! The doctor came and talked to us only to say, we don't really need to talk today.....Kaden is doing what we want him to do. She gave us the thumbs up and walked away. That made us feel so good. Kaden's stats remained good all day and he continued to make lots of pee-pee. He is still very swollen, but he is getting rid of more fluid than he's taking in. They had to up his paralsis meds to prevent him from moving a whole lot. His canula is very sensitive, and they don't want him squirming around too much. The doctor also said that if everything keeps on going in the right direction, we won't have to come to a decision tomorrow.

We are both very frustrated with the ECMO machine and the kinked canula...as are the doctors. But on the other hand, ECMO has kept Kaden alive and gave him a chance to heal and get stronger. As long as his numbers stay good and he continues to pee-pee, his lung should come around. They say that his lung is getting better and they are starting to hear some more breath sounds. We just need to get lots more fluids off to help Kaden.

That's about all the news for today. Good news is great!! We are about to go back to see him and tell him good night before we retire for the night. Our social worker has also told us that we have the room we are currently in until at least April 12th. That's nice to know that we don't have to leave the hospital. That is about all for now, I will update you more tomorrow, or sooner if anything changes. Thanks again for all the support!

**************Baby Collin is still recovering well from his surgery.*****************

Below is a photo of Kristi's fortune she got from her fortune cookie today at lunch. She taped it up to Kaden's isolet.

19 comments:

  1. :-) I have been staying up hoping for an update.. I am thinking of you guys constantly. Glad to hear he is making some baby steps forward! I swear, I think these babies know when it is their time to do their part. I'm so proud of little Kaden!!! Much love to you both, and Kaden and the fam, and hope for even more good steps tomorrow!
    Love and Prayers
    Ashley David and ^Max^

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  2. that is SO GREAT!!!!!!! matt and i are sitting here with the biggest grins on our faces and we just prayed for you all once again. i'm so glad that kaden had a good day. we have prayed so hard not only for a good day but also for rest for the two of you. it's such a blessing to see God working in your lives and in kaden's.

    yay for pee pee and for breathing sounds!!! i have to believe that this precious baby boy is just going to get better and better. God has a plan for kaden and i'm so excited to see what all He has in store for this sweet baby. we will continue to pray for more pee, lung function and more rest for momma and daddy.

    let your other children know that they are in our prayers as well. thank you so much for the update and for allowing us to share in this happy day for your family. Lord, please continue to heal kaden's little body. allow him to remove fluid in even greater amounts and breathe Your breath into his little body.

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  3. Like Ashley, I keep checking in for an update. The prayers are working for Kaden!!! As soon as I saw those numbers, I knew it was great news. Remember, it's going to be up and down, up and down. Enjoy the ups and just survive the downs. Every minute on ECMO is another minute of rest and healing for his little body. Off to say pee-pee prayers :)

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  4. Yay! This post made me so happy I felt teary. Then I cried when I got to your fortune. It is just nice when little things mean a lot. :)

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  5. YAY this post made me cry i am soo happy that he is doing so well now. And Kristi your fortune cookie is right...Kaden is doing so well.... Sending lots more prayers your way :)

    Pee Kaden Pee :)

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  6. so happy Kaden is having a good day. may he continue to get stronger and off ECMO soon. you are always in our thoughts and prayers.
    Joanne and John Michael R-CDH 3/11/07

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  7. What a great update! I LOVE the fortune, too!
    Kaden's being such a good listener by doing what he's supposed to! :-)
    I'm glad to hear that the meeting is canceled, that was probably the best news you heard all day!
    I'm also happy to hear that you guys are getting the rest that you need and deserve!
    Take care...sending many hugs and prayers,
    Love,
    Sheryl

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  8. I cried reading your post this morning. Way to go Kaden!!! So glad the surgeon was able to readjust Kaden's cannula and help bring his stats up. Kaden's Kung Fu warrior skills are getting stronger and he is showing those doctors he can fight and will fight. What a "superbaby" as Ian would say. I hope each day he keeps getting stronger, better lung improvement, less fluids, and keeps peeing. Praying for you Kaden and your family!! Kristi and Craig, give that little boy a high five for me--this is wonderful news to start my Easter weekend!! Sending you all much love, positive thoughts and energy for a great Easter weekend.

    Hugs, Tracy, Chris, Cole, Ian & Shane Meats

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  9. i have been watching your story since you found out about the chd. i am praying so hard for your little man,he is so sweet and such a fighter.i will continue to pray and pray that kaden moves in the right direction. you guys are so strong,and you have a wonderful little boy.

    orionslight from TWW

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  10. I am so happy to hear the positive newes! IO know Kaden will continue to fight. That fortune is a postivie vibe and I love that u recieved it. As always all of u are in my thoughts! Blessings
    Joanna(cherubs)

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  11. That is wonderful news. His stats look amazing! This is the turning point. I am praying that it's all good news from here.

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  12. I just wanted to let you know I am praying for your little Kaden. I just pray for a peace for your family through this journey and a great healing for Kaden's little body. He is a special little boy!! I found your blog through the Tuleys! May God Bless You All!! Will continue to lift you all up!!

    Sissy Glover
    Nashville, TN

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  13. Kristi,

    I am so glad to hear that Kaden is doing better. I have always told you that Kaden was going to be our miracle. I know how happy you must be to get the good news that you have been praying for. With Addison, I would always hope that I would get the news that you recieved. I will keep praying and tell Addison to keep her eye on him and lend him her strength to beat CDH.

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  14. What fabulous news! Continued prayers for pee and the lungs to open up.

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  15. I am glad we talked last night. I was finally a able to sleep. I am praying for Kaden. I am glad that the surgeons were able to fix the canula
    hugs

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  16. KRISTI AND CRAIG AND KADEN,

    LAST NIGHT IN MY DREAM CRAIG SAID KADEN WAS COMING HOME.

    YESTERDAY FRANCIS DIED A LOYAL MOTHER OF 8 CHILDREN AT 71 YEARS OF AGE. SHE TOOK HER STAND LOYAL TO GOD TILL HER LAST BREATH. I STOOD OVER HER AND TOLD HER OF KADEN AND FOR HER TO BE AT PEACE NOW.
    RIP FRANCIS VEGA 4-9-09

    YESTERDAY WAS ALSO THE PASSOVER AND REMEMBERANCE OF JESUS CHRIST SACRIFICIAL DEATH NISSAN 14
    I KNOW ITS CRAZY BUT I BELEIVE...

    NICKI FOUND THIS SONG FOR YOU.

    BAND-LIVE: LYRICS/SONG-LIGHTING CRASHES
    LIGHTING CRASHES A NEW MOTHER CRIES
    HER PLACENTA FALLS TO THE FLOOR
    THE ANGEL OPENS HER EYES
    THE CONFUSION SETS IN
    BEFORE THE DOCTOR CAN EVEN CLOSE THE DOOR
    LIGHTNING CRASHES AND OLD MOTHER DIES
    HER INTENTIONS FALL TO THE FLOOR
    THE ANGEL CLOSES HER EYES
    THE CONFUSION THAT WAS HERS
    BELONGS TO THE BABY DOWN THE HALL
    OH NOW I FEEL IT, COMIN'BACK AGAIN
    LIKE A ROLLIN' THUNDER CHASING THE WIND
    FORCES PULLING FROM THE EARTH AGAIN
    I CAN FEEL IT
    LIGHTNING CRASHES A NEW MOTHER CRIES
    THIS MOMENT SHES BEEN WAITING FOR
    THE ANGEL OPENS HER EYES
    PALE BLUE CLORED IRIS
    AND PUTS THE GLORY OUT TO HIDE, HIDE

    THIS IS FROM MIKE AND MAGGIE VEGA, VENESSA AND PHIL STEEMERS, ADAM EDWARDS AND ROXANNE DOBREC, NICKIE ZBYCZIK, SHAN AND NA
    WE ARE ALL PULLING FOR YOU AND LOVE YOU.

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  17. We are so happy that Kaden is doing well. His stats look great- thanks for the pic. Way to go little man! We are thinking about you all and hoping that Kaden remains stable and that his lungs will continue to improve.
    And great news about baby Collin. Kaden, not long to go and you will also have your little repair!
    Hugs,
    Ingrid, Alex & Alina

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  18. Hey Craig & Kristi! Whenever my husband and I come home from our day, one of us asks the other, "how is Kaden doing?" We are with you in spitit through the ups and downs you are experiencing. Just know that you are not alone!

    Keirsey Family

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  19. Glad you guys had a good day. Praying that many more are to come.

    ~Lisa Daher

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