Sunday, April 19, 2009

Kaden and his sidekick



THIS IS KRISTI'S POSITION WHILE WE ARE IN THE NICU. SHE HOVERS OVER KADEN ALL DAY LONG PRAYING FOR MORE PEE PEE!!!




Another great day for Kaden. He continued to have good stats pretty much all day long. His pee has slowed down, but he is still getting rid of some of the fluids. We got to the NICU at around 8:30 am and Kaden's stats had stayed the same all night long. Kristi and I sat by his bedside most of the day giving him prep talks and telling him how much we love him. I was singing lots of daddy songs (songs that I just make up as I sing them) which Kaden loves. His stats always seem to go up by a few points every time I talk to him or sing to him. Today, Kaden was trying soooo hard to open up his right eye, but is still unable to due to the swelling. We cannot wait to see him open his eye. They have weened his blood pressure medication down from 20 to 4 today. After spending the entire day next to Kaden, we had mad plans to go out to dinner with Tim and Hayley Murphy (Baby Collins parents). We went out and had a nice relaxing dinner. After dinner, we came back to the hospital for about another hour. Kaden was still doing well and we decided to head back to our hotel about 9 PM. It was very hot today is San Francisco, which means that it's hot inside the hospital and our hotel room. We were sweating in the NICU because it was so hot. Now that we are back at our hotel, it is still hot and we have all of our windows open. We look forward to trying to get some sleep tonight. Last night was pretty much the same deal with our hotel room.....planes, trains, and automobiles.....ALL NIGHT LONG!!! We are tired and ready for a good night sleep.


BELOW IS A PICTURE OF BABY COLLIN A FEW DAYS AGO. COLLIN HAS HIS C-PAP AND BINKY IN. LOOKS LIKE A CDH SUPERHERO!!!!







BELOW IS A PICTURE OF BEAUTIFUL BABY COLLIN TONIGHT AFTER WE CAME BACK FROM DINNER WITH TIM AND HAYLEY. COLLIN NO LONGER HAS HIS C-PAP, HE IS NOW ON A NASAL CANNULA. YOU CAN ALSO SEE HIS LITTLE CDH SCAR. WHAT A LITTLE WARRIOR!!!!!



13 comments:

  1. Hey guys!!! I sat right where Kristi sits when I was with Max. :-) I am glad Kaden is still doing well... have they said anything about surgery? We are continuing to pray for you all and Collin. Tell his parents I think he is precious. :-) Much love and many prayers!!!
    Ash

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  2. Go fight! Beat that old CDH down! You can do it Kaden! Glad to hear he is holding his own, steady stable pace! Keeping you all in my prayers!

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  3. what a great sidekick kaden has! and i'm sure he thoroughly enjoys having his own personal musician! you two are such fantastic parents. your children are so blessed to have you as well as you being blessed to have them! thank you for the update. we so look forward to reading about little kung fu kaden evey night. judah (one of kaden's many april sidekicks) says to fight hard kaden! we're still praying for you guys!!!!

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  4. I am so glad that Kaden is doing well. I keep him in my thoughts and prayers always.

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  5. Many continued prayers for your warrior, so glad the med weans are going good and his stats are still stable!!! Keep fighting Kaden!

    Hugs, Tracy- Ian's mom

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  6. so great to read that Kaden is doing so much better! Keep up the pep talks as I know he hears you and is motivated by them :). On a sied note, that little Collin is adorable too!

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  7. I remember those tall uncomfy chairs well- but they are the best seat in the house! We are still praying for little Kaden! :)

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  8. Still praying in UT. Kaden is truly a beautiful baby...love that last pic of him.

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  9. Go Kaden Go!!!! You're doing so well!!!! What about surgery? Have they talked any more about when? Still praying!!!!

    Love,
    Stephanie
    Brooke and *Kamryn's Mommy

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  10. Hi Kristi,
    We're continuing to keep Kaden and you guys in our prayers! Pee, little man, Pee!!!! :-)

    We're glad that Kaden is stable with his sats...that's all you can ask for at this time!
    Collin is adorable! We'll keep Mr. Collin in our prayers, too!

    Wishing you well,
    Sheryl

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  11. Just checking in on Kaden! We continue to send our prayers for you all.

    The Cieszko Family

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  12. Go babies, go! So glad to hear good news for both Kaden & Collin!

    We'll keep the prayers comin' for all of you.

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  13. i am so glad to hear that kaden is doing well. i'm back at work tuesday night and cannot wait to see the incredible shrinking boy! know that you are in my thoughts. -sarah (kaden's mommy's nurse)

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