It's Mommy, here. Craig kinda "took over" the blog for the past few days because he does such a great job (it has to be therapeutic) and some days I am just to much of a mess to relay all the information. Today is actually my official "due date". We are SO PROUD of our little man. He is fighting so hard to beat this CDH monster! His stats remain "stable" (upper in the low 90's and lower in the mid 80's)and the best news of all....drumroll, please....he has pee'd off 500mls, yes 500cc's, of fluid in 24 hours!!! The doctor's (I think) are in SHOCK! We just left rounds, and it sounds like they are going to "take it day by day" to decide when to do his surgery. We were shooting for Monday, but they decided today that he may be ready by Sunday. The other good news is that his labs look great, meaning that the fluid he is getting off is coming from all the vascular tissue (which is where it needs to) and not depleting his nourishment. The good news for us is that he seems to be shrinking before our eyes. He even has half of his face back (If that makes any sense) They can get his eyes open again to get the artificial tears in--something they haven't been able to do for over a week. We are so excited about the babysteps in the right direction. In a situation like Kadens, you really learn to take the good moments and enjoy them.
I have to say, I am a little nervous about the surgery. It scares me to think that he is going to need so much to overcome the recovery. But it is a milestone that we need to reach. I feel like I do nothing but pray all day for God to give us a miracle and to have mercy on us. We know everyone has been praying for Kaden, and PLEASE, PLEASE don't stop. (I normally don't like to beg.....) We know this is why he is holding steady and making progress. We just love him so much and being with him all day is such a joy. Sometimes I feel like my heart is going to burst!
This is all for now. I am sure Craig will update during the day as things progress. We love you all and cannot thank you enough for the love and support you have shown us.
Please continue to pray for Lindsay and baby Jon (born on Monday) in MN. He is stable and doing well--she said that they were going to try and do his repair early next week. Also, baby Jaime and Sheryl. We are anxiously awaiting an update, but at last post, he was holding steady and doing well. And last, but definitely not least, Baby Ruby, who is currently on ECMO @ CHOP. Sounds like she is doing well. Just know we are thinking of you all and praying for our CDH FIGHTERS! We love you all....
Remembering Uncle Frank
10 months ago
(((HUGS))) Kristi and Craig!! Happy 2 weeks Kaden!! I love that he is keeping his stats up and peeing off the extra fluid!! Kaden is in our prayers and we are praying he will overcome this CDH monster. He is so strong and one determined little boy. Surgery is scary, but so necessary for Kaden to continue on the road to healing and HOME. Will be saying prayers and you will defintely have to post when surgery will be. Have a good day Kaden and keep making those baby steps.
ReplyDeleteMuch love, Tracy - Ian's mommy
:-) Hi Kristi! Craig did great with updates.. you two must make a good team. I cannot tell you how happy I am to hear brother Kaden is doing so well.. I continue to pray for him constantly. Don't worry too much about surgery. I have a feeling he is going to do just fine! We love you guys and if you need anything, please just let me know. I was thinking this morning that it was Kaden's 2 week birthday! Go Kaden! Much love and many prayers
ReplyDeleteAsh (and David and ^maxton^
Happy 2 weeks Kaden. Before you know it, it will be 2 months, 2 years and many more birthdays to come. Little one, you are doing fantastic and we are all looking forward to hearing news about your surgery!
ReplyDeleteHugs,
Ingrid, Alex & Alina
Ruby is exactly one week younger than Kaden! Happy Birthday to both of you!
ReplyDeletehappy 2 weeks kaden!!!! we are so proud of you for fighting like you are and for peeing so much! i never thought i would be so happy to hear about a little one going pee pee! kaden you have faced more in your 2 weeks on earth than most face in a lifetime. i have a feeling God is going to use you in ways that none of us can even begin to fathom. we're still praying for you buddy and can't wait for the next blog entry filled with good news!
ReplyDeleteGlad to read such a good update!
ReplyDeletePrayers and thoughts,
The Cieszko Family
It sounds like he is surrounded by tons of love and amazing medical staff. What a huge blessing! You are all in my thoughts and prayers.
ReplyDelete